WHAT IF MY HEALTH CARE PROVIDER SAYS "AUTISM"?
The first time you hear “autism” will likely be an overwhelming moment. The more you read and understand about autism, the more you will be prepared for what to do next. In May of 2013, the American Psychiatric Association redefined the criteria for how someone is diagnosed with autism. While the details may have changed, the nature of autism spectrum disorders is still the same. The new definition describes a range of conditions which include problems in social communication and the presence of stereotyped, repetitive behaviors. These behaviors can be hand flapping or “stimming” or lining up objects in an unusual way.
For someone to be diagnosed with autism, he or she must show problems in both social communication AND repetitive behaviors. These behaviors may have be seen in the past or may be part of current symptoms.
Step One: Act Early
If your child has been recently diagnosed with autism, you are probably feeling very overwhelmed. But there are many resources out there for you and your family and those resources and supports are growing every day! The Autism Speaks 100 Day Kit is a good place to start. The 100 Day Kit was created to help you make the best possible use of the first 100 days following your child’s diagnosis. It contains information and advice collected from trusted and respected experts on autism and parents like you.
Stay on top of all of the services and supports he is receiving at school. Learn as much as you can about the related services, accommodations or assessments in his IEP. In addition, talk to other parents and research what services and supports others in your school or community have received to make sure you know what is available.
For a free copy of the 100 Day Kit, contact the Autism Speaks Autism Response Team:
- Call: 1-888-288-4762 (in Spanish: 1-888-772-9050)
- Email: familyservices@autismspeaks.org
- Text ART to 30644
The Autism Response Team (ART) is specially trained to connect people with autism, their families and caregivers to information, tools and resources. ART can connect you with local services and provide tools and resources to help guide you in the right direction. The Autism Response Team is always happy to help!
Why is it important to act early?
Early attention to improving the core behavioral symptoms of autism will give your child – and the rest of your family – several important benefits. Among other benefits, a good Early Intervention program will:
- Build on his or her strengths to teach new skills and improve areas of weaknesses Early intervention is a way to teach your child some things that he or she may need extra help learning. For example, using words to talk, playing with other children or dealing with changes.
- Provide you with information that will help you better understand your child’s behavior and needs
- Offer resources, support and training that will enable you to work and play with your child more effectively
- Improve the outcome for your child If your child receives a diagnosis, reach out for services as soon as you can. It is never too early to act on your concerns or to reach out for help!